MyClusters

Understand. Track. Feel better.

Empowering cluster headache warriors with insights, community, and proactive care pathways.

We've tried our best to build MyClusters centered on privacy by design. As a Clusterhead and a user myself, I'm trying to find a balance between strict privacy standards and maximizing the potential for research insights. MyClusters is being built with this balance in mind. Please read on, and tell us where we can improve. (Read our Privacy Statement here)

It is common knowledge that if a product is free, you are the product, or rather your data. Here we are being upfront about it, saying we don't need all your data. We won't serve you targeted ads, or sell your data to insurance/pharma companies. We don't collect excessive personal information that can be traced back to you (we don't even know your name). We believe we can be transparent about the data we share, so you can make an informed decision. Hoping you can find your questions answered below:

Have more questions or concerns?

We're here to help. Contact us at privacy@myclusters.nl if you have questions about:

  • Data privacy
  • Research participation
  • Your rights
  • Security measures
  • Consent modification
  • Suggestions