When the first attack happened, it was such a new experience, that I think the young me could not even comprehend what was going on. I vaguely remember I was so stunned by the high pain level. I wanted to cry and scream, but all that happened was a mix of uncontrollable tears from watered eyes and sweat from alternating between cold and hot sensations. Every second felt like eternity, and I was also in a confused state of not sure which reality I am in. 

Clusterbusters has over 20 years of experience and can help a patient know what information to provide the clinician, and how to have more productive conversations not just in diagnosis, but also ongoing treatment. Equally important, Clusterbusters provides support programs at every step of the way. We have our website, one on one programs, support groups, and in person conferences.

We are Ireland’s only patient charity providing support, education, information and reassurance to people suffering from migraine and other primary headache disorders, including Cluster Headache. We provide free educational

My cluster headache has been chronic and severe for 4 years, with 5 to 10 attacks per day without a single day of remission. Initially unilateral on the right, I became bilateral in December 2024 / January 2025. I almost committed suicide several times,

I sat down with two fellow cluster headache sufferers and MyClusters users and we compared our reports and discussed which reports are useful, how we use them, amongst other things. If you have other insights let us know. Follow us on instagram for more insights and stories

I sat down with two fellow cluster headache sufferers and MyClusters users and we compared our reports and discussed which reports are useful, how we use them, amongst other things. If you have other insights let us know. Follow us on instagram for more insights and stories

Since the age of 18, I have experienced severe headaches/shots on a weekly, if not daily, basis, strictly one-sided. Progressively, the attacks became more frequent and persisted longer. I always took this for granted because everybody has headaches sometimes, right? (I thought)

My cluster headaches started when I just moved out of my parents’ place. I was 22 years

old. Since I experienced a period of time in my puberty having migraines, the GP would

send me home with a “weekend-migraine” diagnosis for about 3 years. Women+severe

headache=migraines

Studying Ccuster headaches gets tricky [2]. It is not a common occurrence, most of us are episodic, with sporadic attack frequency and variation, spontaneous remission that cannot specifically be attributed to medication. Clinical and Academic research in cluster headaches commonly face challenges in patient recruitment, retention, and protocol deviation.

For years, my attacks had been right-side predominant. Left-sided attacks were rare, and if I had them, they were around a 4-5 pain level. Now, I was getting 7-9 pain level attacks on the left.

For three days straight, I had daily attacks at 10:30 AM. Then, they settled to 3-4 per week.This time, I had MyClusters. I was the first user of my own app, and from Dec 5 to Jan 12, I tracked everything properly.