darshan Ramanagoudra 4/14/25 darshan Ramanagoudra 4/14/25

Three clusterheads compare attacks over a month - Part II

I sat down with two fellow cluster headache sufferers and MyClusters users and we compared our reports and discussed which reports are useful, how we use them, amongst other things. If you have other insights let us know. Follow us on instagram for more insights and stories

darshan Ramanagoudra 4/2/25 darshan Ramanagoudra 4/2/25

Three clusterheads compare attacks over a month - Part I

darshan Ramanagoudra 3/27/25 darshan Ramanagoudra 3/27/25

Never be ashamed of the illness you are fighting

Since the age of 18, I have experienced severe headaches/shots on a weekly, if not daily, basis, strictly one-sided. Progressively, the attacks became more frequent and persisted longer. I always took this for granted because everybody has headaches sometimes, right? (I thought)

darshan Ramanagoudra 3/21/25 darshan Ramanagoudra 3/21/25

Living with a chronic disease is like having a full-time job. One that you can’t take a day off from

My cluster headaches started when I just moved out of my parents’ place. I was 22 years

old. Since I experienced a period of time in my puberty having migraines, the GP would

send me home with a “weekend-migraine” diagnosis for about 3 years. Women+severe

headache=migraines

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Do we need Real World Evidence cluster headache studies?

Studying Ccuster headaches gets tricky [2]. It is not a common occurrence, most of us are episodic, with sporadic attack frequency and variation, spontaneous remission that cannot specifically be attributed to medication. Clinical and Academic research in cluster headaches commonly face challenges in patient recruitment, retention, and protocol deviation.

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How I Used MyClusters to Track My Last Cycle

For years, my attacks had been right-side predominant. Left-sided attacks were rare, and if I had them, they were around a 4-5 pain level. Now, I was getting 7-9 pain level attacks on the left.

For three days straight, I had daily attacks at 10:30 AM. Then, they settled to 3-4 per week.This time, I had MyClusters. I was the first user of my own app, and from Dec 5 to Jan 12, I tracked everything properly.